Brouwer, P. (2017) How does Quality of Life and Appearance change after facial oncologic Surgery? : A National Multicenter 3-months Follow-up using the Face-Q. thesis, Medicine.
Full text available on request.Abstract
Introduction: Skin cancer is a growing concern and currently the most common type of skin cancer in the Netherlands. The largest group is the basal cell carcinoma (BCC) that ultimately leads to extensive local destruction. Of all BCCs, approximately 60% are located in the head-neck area. Where 4000 new cases of BCCs were diagnosed in 1973, this figure is 35,700 in 2013. The face is a potentially mutilating site for skin cancer excision and has many challenges regarding the closure of defects made. Mohs surgery is a method where, after surgery, all cutting surfaces are checked histopathologically by microscopy to ensure certainty about radical excision. This method is used for all facial BCCs excited by the dermatologist in the Catharina Hospital. In about 200- 240 patients a year, the defect is treated by the plastic surgeon after Mohs. At this moment, this part of the plastic surgical treatments is "doctor-centered". In order to achieve a "patientcentered" (shared decision-making) model, patient satisfaction information is crucial. To this end, the FACE-Q is used in this study. The FACE-Q is a PROM-a psychometric validated questionnaire. This tool, created in the United States and recently translated into Dutch, enables us to measure concepts such as symptoms, satisfaction with appearance, health-related quality of life and psychological well-being. The FACE-Q refers to a set of more than 40 independently functioning scales and checklists that measure the concepts and symptoms that patients think of their appearance, quality of life, adverse effects and care Objective: To evaluate the change in FACE-Q score in patients undergoing facial oncologic resection in the Catharina hospital Eindhoven. Methods: For this thesis and study, we analyzed only ‘satisfaction with facial appearance’, ‘cancer worry’ and ‘satisfaction with information’. Additionally we register the adverse effects. Each category is scored between 0–100, a high score is positive. The study was carried out with a longitudinal prospective design. Patients filled out the FACE-Q pre and 3 months post operative. Results: A total of 72 patients were included. Mean preoperative score on the category appearance was 68.14 (on a scale from 0-100): this score was 69.9 three months postoperatively (p>0.001). On category QoL the mean score was 41.31 pre-operative and 34.26 postoperative (p>0.001). Mean score on satisfaction with information was 62.18 and went up to 78.39 three months postoperatively (p<0.001). Conclusion: The FACE-Q is the first PROM specific for measuring treatment of facial oncologic patient. Our results show that there is no substantial effect of facial oncologic surgery on appearance and HRQoL in patients treated at the Catharina hospital Eindhoven. However, there is a significant increase in the patient’s experience of process of care post operatively. Our study is set to open up and demonstrate the possibilities of the FACE-Q.
| Item Type: | Thesis (Thesis) |
|---|---|
| Supervisor name: | Facultair begeleider UMC Groningen: and Lei, Prof. Dr. B van der |
| Supervisor name: | Ottenhof, Drs. M. and Hoogbergen, Dr. M.M. and Catharina ziekenhuis Eindhoven, afd Plastische Chirurgie |
| Faculty: | Medical Sciences |
| Date Deposited: | 25 Jun 2020 11:01 |
| Last Modified: | 25 Jun 2020 11:01 |
| URI: | https://umcg.studenttheses.ub.rug.nl/id/eprint/2108 |
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