Oord, Sanne (2025) Sharing is caring: in need of more shared decision making in the treatment of non segmental vitiligo in the Netherlands. A n exploratory retrospective cross sectional survey study. thesis, Medicine.
Full text available on request.Abstract
Background Treatment options for non se gmen tal vitiligo vary depending on individual factors and goals, making shared decision making essential to align treatment with patient preferences. L ittle is known on the extent of and demand for shared decision making by patients in the treatment of non segmental vitiligo in the Netherlands The p rimary objective is to assess the extent to which patients have experienced shared decision making in relation to treatment decisions . Secondary objectives are the assessment of patients' decisional conflict and preferences regarding shared decision making. Method s: Patients with non segmental vitiligo from the A msterdam UMC SNIP department completed t he survey which included demographic and clinical characteristics and three validated questionnaires: the 9 item Shared Decision Making Questionnaire , the Control Preference s Scale and the Decisional Conflict Scale . Data were mainly summarised using descriptive statistics. Results: Patients experienced a moderate level of involvement in the process of shared decision-making (SDM-Q-9 mean of 54.47 (SD 24.07) and median 55.56 (IQR 38.33-71.11)). Most patients (62%) experienced decisional conflict and preferred to be actively involved in the decision-making process (46%), while 66% preferred to use a decision aid tool. Subgroup analysis showed that patients with a lower educational level preferred a passive role and desired the use of a decision aid tool (p-values 0.01 and 0.005, respectively). Conclusion: Improvement in shared decision-making for patients with non-segmental vitiligo is needed, even in an expertise centre for vitiligo.
| Item Type: | Thesis (UNSPECIFIED) |
|---|---|
| Supervisor name: | Wolkerstorfer, dr. Albert and Jukema, drs. Marlinde and Oldhoff, dr. Marja |
| Faculty: | Medical Sciences |
| Date Deposited: | 21 Apr 2026 12:56 |
| Last Modified: | 21 Apr 2026 12:56 |
| URI: | https://umcg.studenttheses.ub.rug.nl/id/eprint/3929 |
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