Brouns, B. (2014) Home sweet home: testing a home-based rehabilitation program for families with a young child in paediatric rehabilitation, based on experiences of parents and service providers. thesis, Human Movement Sciences.
Full text available on request.Abstract
Introduction: The role of the family in paediatric rehabilitation is emphasized by familycentred care (FCC). However, rehabilitation centres (RC) do not succeed in implementation of FCC. Home-based rehabilitation (HBR) may contribute to family-centeredness of a services. This study investigates which family and process-related characteristics made the HBR-program @home beneficial and feasible for the service provided to families with a young child in paediatric rehabilitation, based on the experiences of parents and service providers of the RC. Methods: An exploratory research design was used. Families with a young child in paediatric rehabilitation were visited at home by the service providers. The service consisted of advice, observation or therapy. Interviews with the paediatric team and parents about the experiences of HBR were conducted. A thematic analysis was performed to identify the main family and process-related characteristics. Results: 25 families including 27 children, with a mean age of 25 months, participated in @home; 113 home visits, 105 visits at the RC and 76 telephone calls were conducted with sixteen service providers. The thematic analysis resulted in fifteen characteristics beneficial for the rehabilitation service and seven non-beneficial characteristics. Beneficial characteristics were reduced burden for the family, the opportunity for a quick and holistic perception of the (complex) situation and the child possibilities, more personal contact and the service became adapted to the family and home situation. @home can be non-beneficial due to travel issues, distraction and discomfort at home and problems with the planning. Conclusion: Beneficial characteristics were more of influence than non-beneficial characteristics, making @home beneficial for the service provided to families with a young child in paediatric rehabilitation. When consisting of advice or observation, @home was feasible. Long-term therapy is not feasible, the aim of giving therapy is to facilitate the transition to a therapist who is not appointed at the RC.
| Item Type: | Thesis (UNSPECIFIED) |
|---|---|
| Supervisor name: | Schoemaker, M.M. and Ketelaar, M. and Maren-Suir, I. van |
| Faculty: | Medical Sciences |
| Date Deposited: | 08 Apr 2022 11:41 |
| Last Modified: | 08 Apr 2022 11:41 |
| URI: | https://umcg.studenttheses.ub.rug.nl/id/eprint/3072 |
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