Psychometric properties of the Participation scale among former Buruli ulcer patients in Ghana

Tak, P. van der (2016) Psychometric properties of the Participation scale among former Buruli ulcer patients in Ghana. thesis, Medicine.

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Abstract

Buruli ulcer (BU) is a disease caused by Mycobacterium ulcerans. BU usually starts as a nodule and can progress into a typical ulcer with undermined edges. These ulcers can develop into to a large necrotic lesion, sometimes affecting the bone. It can result in scarring, deformities and contractures, which may lead to severe and permanent functional limitations. Almost half of the former BU patients aged 15 years and older in Ghana and Benin have participation restrictions which are measured via the Participation scale. Children under 15 years represent the largest part of the BU disease burden and of the general population. A P-scale for children has been developed in Benin. This P-scale had to be tested for validity and reliability before put into practice. A total number of 109 former BU patients were interviewed along with 62 relatives and 79 healthy controls. More than 70% of the former BU patients had a P-scale score of 0 (no participation restrictions). The most frequently reported problems were related to sports. The scores of former BU patient were statistically significantly higher in women than in men. Two out of the six hypotheses for the construct validity could be accepted; a positive correlation was found between the P-scale scores and the Buruli ulcer functional limitation score (BUFLS) and the children’s dermatology life quality index (CDLQI) scores. The intraclass correlation coefficient used to test the reliability did not reach statistical significance. Former BU patients had a statistically significant higher scores than the healthy controls. It is possible that not enough patients were included to get statistically significant results. Further research needs to be done to see if the P-scale is a suitable instrument for measuring participation restrictions in children.

Item Type:	Thesis (Thesis)
Supervisor name:	Faculty supervisor: and Stienstra, Ymkje internist/infectious diseases specialist an and UMCG Groningen, department of infectious diseases
Faculty:	Medical Sciences
Date Deposited:	25 Jun 2020 10:55
Last Modified:	25 Jun 2020 10:55
URI:	https://umcg.studenttheses.ub.rug.nl/id/eprint/1610

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