Douwstra, M.E. (2012) Participation restrictions in former Buruli Ulcer patients in Ghana (West-Africa)and the relation of those restrictions with functional limitations and stigma. thesis, Human Movement Sciences.
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Abstract
Background: Buruli Ulcer (BU) may result in permanent disability, an umbrella term that involves impairments, functional limitations, and participation restrictions. Currently, there are no data available about participation restrictions in former BU patients, but functional limitations and stigma are believed to be important influencing factors and have often been reported for former BU patients. Objective: The aim of the current study was to determine whether or not former BU patients living in Ghana had higher participation restrictions than healthy community controls. In addition, the relations between participation and functional limitations and stigma in former BU patients were evaluated. Procedures: In total 75 former BU patients and 50 healthy community controls were included. Participants were interviewed at their homes. Participation was measured with the Participation scale (P-scale ), functional limitations with the Buruli Ulcer Functional Limitation Scale 1 (BUFLS) and stigma with the Explanatory Model Interview Catalogue (EMIC). The controls only answered the questions of the P-scale. Results: former Buruli Ulcer patients had significant higher participation restrictions than healthy community controls (U = 2,868.5, p<0.001, r: 0.45). In addition, high and significant spearman rho correlations were detected between the P-scale and the BUFLS (r = 0.63 , p < 0.001) and between the P-scale and the EMIC (r = 0.63, p < 0.001 ). Conclusion: Probable causes of participation restrictions in former BU patients are the frequently observed functional limitations and stigma. Health education programs have been shown to be useful in the prevention of functional limitations and stigma, and as such seem to be useful to improve participation in former BU patients as well. Future research should focus on the development and the evaluation of effectiveness of such a program.
| Item Type: | Thesis (Thesis) |
|---|---|
| Supervisor name: | Kamsma, dr Y.P.T. and Internal supervisor, Center for Human Movement Sciences and Zeeuw J. de (PhD) and Stienstra, dr. Y. and External supervisors, Buruli Ulcer Project group |
| Supervisor name: | Abass, K.M. and Buruli Ulcer Coordinator, Agogo Presbyterian Teaching Hospit |
| Faculty: | Medical Sciences |
| Date Deposited: | 25 Jun 2020 10:53 |
| Last Modified: | 25 Jun 2020 10:53 |
| URI: | https://umcg.studenttheses.ub.rug.nl/id/eprint/1377 |
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