Veenstra, A. (Amarins) (2013) Pilotstudie naar de bruikbaarheid van de MANSA-16 in de Routine Outcome Monitoring van de psychiatrische zorg voor licht verstandelijk gehandicapten. thesis, Medicine.
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Abstract
Background: Quality of life is considered a very important outcome measure in the psychiatric care for people who have a mild intellectual disability. Objective: The objective of the present pilot study is to evaluate if the MANSA-16, a widely used questionnaire for measuring quality of life in general psychiatry, can also be used to measure the quality of life of psychiatric patients with a mild intellectual disability. Methods: A literature study was performed to evaluate the validity of the MANSA-16 for different concepts of quality of life and to evaluate which modifications would be necessary to make the MANSA-16 usable for psychiatric patients with borderline intellectual functioning or mild intellectual disability. Based on results from the literature study the MANSA-16 was modified to make it more suitable for use in the group of people with a mild intellectual disability. Subsequently a pilot study was conducted to evaluate the internal consistency and practical usability of the MANSA-16 in this group of psychiatric patients. Results: The literature study showed that there is no consensus on the definition of quality of life and that different concepts of quality of life are being used in health care. The MANSA-16 is indirectly based on Lehman’s concept of life, which is commonly used in psychiatry. All aspects of Lehman’s concept are represented in this questionnaire. However, many aspects of the more widely used quality of life concepts of both Schalock and the WHOQOL Group are not being questioned in the MANSA-16. The internal consistency in the pilot study was 0,55. On average the respondents needed explanation of one question. Conducting the interview took on average 10,8 minutes. Conclusions: The questionnaire MANSA-16 is with some modifications practically usable for people with a mild intellectual disability and psychiatric problems. The MANSA-16 measures a multidimensional concept of quality of life for this group. However, the validity of the MANSA-16 remains questionable because of a lack of consensus on the concept and operational definition of quality of life.
| Item Type: | Thesis (Thesis) |
|---|---|
| Supervisor name: | Wunderink, L. and Wetenschappelijk Onderzoek en Opleiding GGZ Friesland and Kappelle, J.W. and Auletius Instituut MCL |
| Faculty: | Medical Sciences |
| Date Deposited: | 25 Jun 2020 10:40 |
| Last Modified: | 25 Jun 2020 10:40 |
| URI: | https://umcg.studenttheses.ub.rug.nl/id/eprint/137 |
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