Nutma, S. (Sjoukje) (2014) Airstacken bij myotone dystrofie. De effecten van een preventieve techniek op een uitdagende patiëntengroep en hun mantelzorgers. thesis, Medicine.
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Abstract
Introduction: Respiratory complications are the primary cause of mortality in patients with myotonic dystrophy (MD). The purpose of this study was to investigate an intervention to prevent these complications. This intervention, called air stacking (AS), is a lung volume recruitment technique that is used for cough augmentation. Secondary aims of this study were compliance to AS and the importance of (family) caregivers in this process. Method: An explorative pilotstudy. Inclusion criteria: patients with known myotonic dystrophy, practicing AS >9 months, recruited out of medical files at the neurology department of the Medical Centre Leeuwarden, RadboudUMC, Rehabilitation Friesland, the Centre of Domiciliary ventilation of Groningen and Maastricht. By researching medical files the respiratory complications before starting AS and after starting AS were counted. Questionnaires were used concerning compliance to AS. The view of caregivers was also taken into account. Results: 17 patients with MD type 1 were included, 14 of these had a (family) caregiver. The median quantity of respiratory complications 1 year before starting AS was 1,0 per year. 1 Year after starting AS, this declined significantly (p=0,009) to 0,0 per year. Two years after starting AS a significant decrease remained, p=0,010. Three years after starting AS this decrease was not significant anymore. 9 Of 15 patients had low rates of adherence to AS, which showed a tendency towards a negative influence on the effectiveness of AS, however this was insignificant. 15 Of 17 patients required motivational or physical support in applying AS. Conclusion: This study shows that AS reduces the number of respiratory complications significantly in the first 2 years after starting AS and that compliance and motivation are important in applying AS in MD patients. A tendency towards a negative influence of a low rate of adherence to the effectiveness of AS was shown, however insignificant. MD patients can rarely apply AS without help, as the majority requires motivational or physical support.
| Item Type: | Thesis (Thesis) |
|---|---|
| Supervisor name: | Kooi, dr. E.L. van der and Medisch Centrum Leeuwarden |
| Faculty: | Medical Sciences |
| Date Deposited: | 25 Jun 2020 10:49 |
| Last Modified: | 25 Jun 2020 10:49 |
| URI: | https://umcg.studenttheses.ub.rug.nl/id/eprint/1061 |
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